Some Holiday Fun

jen here! i know this has taken me far too long to put up but here it is! this slide show has pictures from our thanksgiving trip to visit kim and aiden and our family helping brent and the girls decorate their tree. we can't wait until kim and aiden get to come home!! enjoy!

Pictures for Mommy

Update: Day +59

Kaitlin is our little mommy. She loves to come visit us and take care of Aiden. I like it cause she wears him out!

All she wants for Christmas is her two front teeth :) Hailey just keeps losing all her teeth. Personally I think she just wants the tooth fairy to come and leave her money!

Little Mr. Fatface. That is what I call him. We just had our clinic visit yesterday and he is all done taking steriods! YAY! He is doing so great. All his labs are just where they are supposed to be and he is healthy, happy, and busy. His favorite thing at this point is to go around the room and take all the toys out of the basket, cupboards and drawers, throw all the movies and books on the floor and squish up his crackers or cereal on the couch. So...normal toddler behavior! We couldn't be more pleased.

More Pictures of Aiden

The Ronald McDonald House had a professional photographer volunteer to take pictures of the families staying here and so I had to have some of Aiden taken, OF COURSE :)

We love the Spidey stuff. He now had 3 spiderman shirts, 1 pair of pj's and the hat. Plus a patch and a bunch of wall stickers of Spiderman. I had a guy ask me if we were starting him a little young. But waddya do?

I also wanted to make sure that we had enough documentation of the baldy head and fat cheeks!

This one is my favorite! If you want copies I can email any of these so you can have one! I may be biased but he is the cutest ever! Lookin' good buddy!

It's Beginning to look a lot like Christmas!

Grandpa Larry was awesome and got this tree for us to have here in SLC from the Festival of the Trees. It also came with lots of fun alphabet games and toys underneath that we are saving for Christmas! Thanks Grandpa - we love the tree. Aiden has acutally been really good to only play with the train underneath and not try to rip all the ornaments off (yet!)

And the stockings were hung fron the chimney (or banister) with care...wouldn't be christmas without stockings right?!

This is our penguin. Grandma Rutu brought some of her extra decorations down for us and this is one of the ones we get to borrow. Aiden loves it. It is so nice to have some of the Christmas spirit here. I find that I am really missing being home with everyone right now. Last night Brent and the girls and some of our friends decorated our tree and I was a little sad that I was unable to be there and help.

I can do it MYSELF

So, since Aiden is now feeling better he is definitely developing into an almost two-year-old who thinks everything has to be his way and that he can do everything himself. WE think this is wonderful and only occasionally find it frustrating. Hope you enjoy this video. He made a huge mess but at least he ate all his dinner.

SPIDY IN THE HOUSE!

I felt Aiden aka Aider aka mini spidy needed a blog that was slightly more manly. Sorry ladies, this one is for the men in the group... don't worry this can be temporary if everyone protests. But any how, enjoy for a while.


Keep Kickin some IPEX trash little SPIDY!
Love,
Uncle Dave

New Tricks

So we have been working on animal sounds and along with the ones on this short video he knows monkey, cow, and everthing else makes the tiger sound. :) Aiden is doing awesome. He climbs up and down the stairs, he rides his bike and crawls all over. True to the nature of his 20 months he is getting into everything (including the toilet and toilet paper) and definitely leting us know that he is in charge and things WILL be done his way! Feisty! Just like the rest of our kids. We continue to scale back on the steriods and all his levels are just where they should be at this point. All the docs call him a SUPERSTAR!!! Cause he is doing amazing. The rest of us are hanging in there. We miss being a family all the time not just on the weekends. Thank you all for all your support and love. Thank you for prayers, and time and interest in our life. Thank you for giving your time, talents, faith, love and everthing else! We love you all and look at the results! HAPPY THANKSGIVING! We have so much to be grateful for.

Aiden pictures

We have had a few people ask for updated pictures of Aiden. We are thrilled that Aider is doing so well. He is a happy, cute, cuddly boy. He makes bald look cute and those mashed potatoes must be treating him well because those kissy cheeks are adorable. We are fortunate to be inspired by him and his amazing parents and siblings. We took these pictures one week ago at the Gateway outing. Get ready for some cuteness....

Everything Spiderman

Taking a break from the mask. He was such a good boy to leave it on the entire trip. Of course the binkie helps.

Isn't he adorable?! I love this picture!

Playing with Mom.

I think he was blowing kisses.

Tired babies staring into space :)

"Hey Aider, What's up?"

That's all for now! Keep on kicking IPEX's butt Aider. We love you.
Dave, Katie and Emmy

Out of the Hosptial, in New Apartment

Hello everyone, YES we know we have been behind on the blog. So here is the short version, plus a very cute video of Aiden and his cousin Emmy running around and having a great time. OK so YES we are out of the hospital, and we have a nice little apartment set up for Aiden and Kimberly for the next few months (shorter than that if Aiden has anything to say about it) in Salt Lake City. It is policy from the hospital that after a bone marrow transplant you have to stay within 30 min of the hospital in case something happens.
So Kimberly and Aiden stay in the apartment and Brent and the girls drive down on the weekends. Brent stays in Logan during the week so he can work, and the girls are able to stay in school. We have had tremendous help with the girls, dinners, homework etc. Thank you to all that help out.
Aiden is still doing AMAZING!!! He is still taking all his medications, with a few IV meds and some basic fluids still in the mix. All his counts and numbers are up or holding steady. And they have already started to taper off the steroid medication he is on because there is no signs of GVHD (graph verses host disease). Aiden has a new favorite food instant potatos (made with whole milk, extra butter, and sour cream) he practically eats it faster than we can make it.
So we are all still adjusting to the 2 places to live and only seeing each other on the weekends, but with all of your help, support, love, prayes, and everything else is what makes this all possible. Thank you everyone. As you can see from the video Aiden is doing great, if you listen close he is laughing almost the entire time.

TAH TAH for Now!!

HAPPY BIRTHDAY!!

(Jen here, writing today's post!) Today is Brent and Kim's 33rd birthday! What an amazing pair they are! I remember the day I met them, my first full day in Logan. We were at church and sacrament meeting had just ended. I stood up to meet all of Quin's (my fiance then) friends and Brent and Kim were first. Kim came right up to me and gave me a huge hug :) I probably never told her what a difference that made to me, as I was scared to death having just left all my family behind in Texas. That was over 11 years ago and we have been best friends ever since (but I always felt like we had been friends forever). Brent and Quin have been friends since they were about 8 which is a looong time. Our kids have been friends since they were born. After all we have been through we consider each other family. They have been there for us whenever we have needed them and I hope they can say the same! It has been a privilege and a blessing for us to be able to stand by them during this experience with Aiden. We are impressed daily by their strength and faith while they continue on through something that is surely difficult and straining on their family. We wish them both a very happy birthday and send them all of our love!

((((HUGS))))

Day +17, +18, +19

Monday they let us out of his room for the first time since Sept. 30th! We got to go for a walk around the hospital with instructions to steer clear of people and make sure to wear the mask. Of course we had to break out the new spiderman hat. It was so fun!

We got to visit the life size Spiderman! Sweet! Aiden is doing great. He has been eating a little bit and they are starting to switch most of his meds over to oral. We will still go home on 2 that I will run through his central line. We will also be doing TPN (IV nutrition) at home through his line! but hopefully that won't be for too long. Mornings are still a little rough but he is doing great and they are continuing to take away meds like the adavan and the benadryl.

He even got to ride in the Wagon. We went over to U of U and got a hot chocolate and rode in the elevator. It was an adventure. Day +19 we had some great news! Aiden's platelet's engrafted so his body is making it's own platelets - no more platelet infusions! YAY! Mom came up Wed and stayed with Aiden so that Brent and I could go to Logan and pack up the stuff Aiden and I will need for the next 90 days. We will be staying at the Ronald McDonald Main house in their long-term stay apartment. It is all brand new and super nice. It was a quick trip to Logan and back. Now all we have to do is organize the apt and disinfect everything, grocery shop and we will be all ready to be discharged. The girls are so excited to have Brent coming home! The docs have told us Fri is the day! Thank you so much for all of the prayers and faith and love! You have all been essential and to our success and we couldn't have done it without you! We are so grateful! I will continue to update the blog as we have news. For the first little while we will be going to clinic at least twice a week for labs and check-ups so we will probably have news often. We appreciate your continued support and know that Aiden will keep up his great work kicking IPEX trash and building this new immune system. WE LOVE YOU ALL!

Day +16 - Happy Birthday Isaac!

This post is dedicated to our son Isaac Thomas Welsh. Today is his birthday. He would have been 5 this year. He passed away from complications from IPEX on July 31, 2007. He was our sweet boy and little buddy. We miss him so much! We try to celebrate his b-day every year and this year while we didn't get to let balloons go for him, we did get to sing happy birthday! He is one of our special angels and we know that he is watching over this adventure we are on with Aiden. It makes our success with Aiden so much sweeter - he is just flying! How blessed we are to have them both in our family forever! We love you little buddy!

Day +15

Today was a great day! Aiden and Brent had so much fun playing and Aiden is feeling lots better. No fever at all today and his breathing has slowed down. His rash is mostly gone and he is doing amazing! The docs say we can go home sometime next week!

Aiden loves to climb under the crib and play with his toys. He really loves the stickers that Aunt Katie and Uncle Dave brought him. His ANC is up again! Keep growing those soldiers buddy!

I got this picture from Brent with the tag "bald is sexy"! So now we have a little baldy boy! And he is cuter than ever. I told Brent that we should call him cue (not to be maistaken for Q from 007 - but cool just the same). Good thing that hair grows back and he looks so cute bald!

It rained today in SLC! Aiden loves to sit in the window sill and look at the birds and the people and the rain! It is the closest he has been to outside in quite awhile. Until next week when they let us go! We can't wait.

The girls and I have been having lots of fun today too in Logan. We went to Lindsey's reception and had lots of fun visiting with all of the cousins that came to the wedding! It was so good to see everyone and Lindsey looked beautiful, the ceremony was wonderful and they are a super cute couple! What more can you ask for? Life is good!

Day +14

"I'm gonna get ya!" Aiden had a much better day today! He still felt a little sick in the morning but his fever broke. He did have a little bit of a low grade fever at night but was good the rest of the day.

His rash is also better. He is feeling better every day. His ANC was up again today to 2400. Still going up! So good. 2400 is a normal ANC level. So that is GREAT!

"Hey everyone! I love my spiderman shirt and I am doin' good." Aiden and Daddy are having lots of fun together which is good cause Brent is jealous that I get to sleep in our cozy bed at night.

Aiden is getting lots of fun stuff for Halloween from all the volunteer groups! They are so great and really brighten up the kid's stay in the hospital. This light is one of the fun things that was brought in and he loves it! I got this video and was so happy to see how much better he is doing too!

Day +13

So today was a little sad. Aiden had a fever and is breathing really fast. He also has some rash over his body and isn't feeling really great. The docs tell us that this can be normal when you engraft. His immune system came online so fast that his body is trying to keep up. Today his ANC was up to 1900. So it doubled! Way to go little buddy.

Aiden hasn't been wanting to eat solid foods either. The docs told us that some of the older patients that have had transplants say that they have felt nauseous for a couple months afterward. He has a lot of really thick mucous that has been bugging him too so he has been throwing up in the mornings. He still seems to be in pretty good spirits though! Way to be a trooper buddy.

I am leaving to go to Logan today to attend my cousin Lindsey's wedding! Fun fun for me! I get to spend some time with the girls too! Daddy is so good to stay and take care of Aiden! What a good man he is! I don't know what we would do without him.

Day +12 - ENGRAFTMENT!!

When the docs came in this morning they told us that his level was 800!!! Which means that he has engrafted!!! Yay we are so excited. Way to go baby boy! This is his new Spiderman shirt to celebrate the occasion. The docs said that if everything goes well we will be discharged beginning of next week. Aiden and I will still be here in Salt Lake and staying at the Ronald McDonald House's new long-term stay apartment and Brent will be going home to be with the girls and get back to work! They will come and visit us on the weekends so long as everyone is healthy!

Aiden isn't feeling so good today. He has had a pretty high fever and been really tired. This is also normal. Because the body suddenly has an immune system where there hasn't been one it goes into overdrive trying to "fix" everything. So he feels like he has a cold. He is still pretty happy though and he loves his new shirt.

Thank you all so much for all your faith and love and prayers and unwavering support! We love you all so much and know that we have been so blessed to have you! We couldn't have done this so well without you! THANK YOU!

Day +9, +10, +11

Aiden is doing great! On day +9 the docs told us that his white counts were 200. While they don't technically count it yet because anything under 300 can fluctuate a lot. But we are really excited because there is some activity that shows that the new marrow is working! YAY Aiden!!

As you can see from all the pictures Aiden has a lot of bruises. His platelets are really low and that is why he is bruising so easily. We didn't even know that it was a really common thing so the first time he bonked his head in his crib and it immediately turned into a big goose egg bruise we were kinda surprised. He has been having transfusions about every 3 or 4 days cause platelets are one of the first things they burn through when the body isn't consistently replacing it. Crazy!

We are doing really well and so excited to see some activity in his white cells! He did spike a fever on day +11 at night so they are treating it and did more blood cultures to make sure it isnt an infection! Fever is also common when you engraft so we are going to keep our fingers crossed that that is why he spiked a fever.

Day +8

So one of the new favorite things to do is to climb under the crib, play with the toys and then climb down. It makes me nervous cause he likes to climb out head first onto the hard hospital floor. But at least he is keeping his stubborn independent spirit :) He is doing ok today. Brent and I even got to sneak away to the sacrament service that they hold here in the hospital for familys. It is amazing how strong the spirit was at the meeting. Even though it was only a half an hour it was a wonderful peaceful half hour. I thought that I would get a new and updated picture of his friend and constant companion. We now have 5 pumps that run for at least 18 hours out of every day with meds and lipids and TPN (IV nutrition) and often platelets or blood. It is kinda bulky and he has about that many tubes connecting him to it. Crazy! Needless to say it constricts movement. Things are still going well. He really doesn't eat much at this point. He has one mouth sore but considering he could have them all over in his mouth, and throughout his GI tract we are feeling pretty positive about it. Haven't seen any hair loss at this point or any new cells but that is also normal! We are good and so is Aiden.

Day +7

Look who else came to visit!! Uncle Mike and Aunt Nichelle! Obviously Kaitlin finds the TV much more interesting than having her picture taken. Before we met with Mike and Nichelle, the Brent and the girls and I went to eat at the Cheesecake Factory! YUMMY! So good. I told Brent that we should have waited until the girls weren't with us so that we didn't have to waste the deliciousness on them :) They dont truly appreciate it anyway. But they are just too lucky.

We met M&N at the LDS Conference Center downtown and decided to go see the movie in the Legacy Theater "Joseph Smith:The Prophet of the Restoration". I cried this time too! It is such a powerful movie and was nice to be able to do something completely spiritual. The girls went home today. Darren and Lisa took their family to a REAL soccer game and took the kids home with them. We are so glad that we were able to spend so much time with them.

They started Aiden on steriods today (this is a normal part of the process that helps keep GVH from flaring) and he is raging! I really hate the way the steriods effect him but at least they helped with the fever. No more fever is good but he continues to be uper grumpy! At least he has some energy and has been playing and coloring and walking with his new walker. I will have to put a video on of that it is freaking cute!

Day +6

So - How to Train Your Dragon came out on DVD today and so we had to rush to Walmart and buy it. Kaitlin and Hailey and I saw it twice in the theaters and loved it. Brent had never seen it and so he wanted to get it just to see what all the hype was about. I really love this show :)

We also went to Gateway today while Aiden was napping. Gateway is a cool mall! We ended up getting Hailey a bunch of new pants cause all of hers that we got for school are too big. Lucky her. That means KP gets a bunch of new pants too cause she gets to wear all of Hailey's. At least there is a Rocky Mountain Chocolate Factory there so I got to get a caramel apple!

Aiden isn't feeling very well today. It was a rough night and he has continued to have a fever. The docs told us that he has a virus in his blood stream. (CMV?) About half the population does and it isn't a big deal unless you have no immune system. They are treating it and they will until his immune system is strong enough to fight it back into submission. They expected this so it is "normal" and he is doing well still. He also had his last mini dose of chemo today and they doubled up on the nausea meds and gave him some pain meds also so he took a really great nap. He needed it! Please keep up the faith and prayers!!

Say +5

SURPRISE! Look who came to visit! Uncle Dave, Aunt Katie and Emmy!!! We were so happy to see them and they came bearing gifts.

"Mama - what is this thing?" Emmy is walking! We didn't even know it. Hey, I know that we are supposed to keep everyone update but that goes both ways! You guys have to keep us updated as well so that we don't feel so out of the loop! Shame Shame!

Playing with uncle Dave! We ended up going to lunch while Aiden was napping - He had a low grade fever this morninr which they tell us is normal when the counts are low so they did a bunch of tests to make sure that everything was ok and there weren't any crazy bacteria or viruses that we need to worry about. Everything looks good so we just treat the fever!

Miss Emertons. She was like a whirlwind! I am so glad that I got to kiss on her chubba cheeks! Aiden won't let me at all anymore. He swats at me. So sad.

This is the Halloween gift box that we got from D/K&E. It was awesome:sixlets, kitkats, twix, reeces pb cups, stickers/stickerbook, fuzzy blanket and pillow with ghosts, smelly lotion and lip stuff (for me) sudoku, word puzzles, skeleton outfit and socks for Aiden! You guys are awesome! We love you thanks for all the goodies! While Aiden was asleep we got to go out to lunch at 5 Guys Burgers and Fries. We heard good things about it from Darren and Lisa and Dave's Boss too so we decided to try it out! Delicious- Be warned that the large fry will feed like 6 or 7 people (even though they tell you it feeds 3-4). Dave and Katie even took the girls to the kid's center here at PCMC on the third floor where they got to paint pumpkins too! We had a really fun day!

Here is our updated board - we have a special Halloween card from Dave and Katie and the Ghost plate made by Hailey! I am still missing some pictures from Grandma and Grandpa Goonan, Mike and Nichelle, and the Darren Anderson family! You can find the address to send them to us on one of the previous posts! We would really like to have those :) We love and appreciate you all! Take care and MAKE SURE YOU KEEP US POSTED AND UPDATED!