Monday they let us out of his room for the first time since Sept. 30
th! We got to go for a walk around the hospital with instructions to steer clear of people and make sure to wear the mask. Of course we had to break out the new
spiderman hat. It was so fun!
We got to visit the life size
Spiderman! Sweet!
Aiden is doing great. He has been eating a little bit and they are starting to switch most of his
meds over to oral. We will still go home on 2 that I will run through his central line. We will also be doing
TPN (IV nutrition) at
home through his line! but hopefully that won't be for too long. Mornings are still a little rough but he is doing great and they are continuing to take away
meds like the
adavan and the
benadryl.
He even got to ride in the Wagon. We went over to U of U and got a hot chocolate and rode in the elevator. It was an adventure. Day +19 we had some great news!
Aiden's platelet's engrafted so his body is making it's own platelets - no more
platelet infusions!
YAY! Mom came up Wed and stayed with
Aiden so that Brent and I could go to Logan and pack up the stuff
Aiden and I will need for the next 90 days. We will be staying at the Ronald McDonald Main house in their long-term stay apartment. It is all brand new and super nice. It was a quick trip to Logan and back. Now all we have to do is organize the apt and disinfect everything, grocery shop and we will be all ready to be discharged. The girls are so excited to have Brent coming home! The docs have told us Fri is the day! Thank you so much for all of the prayers and faith and love! You have all been essential and to our success and we couldn't have done it without you! We are so grateful! I will continue to update the blog as we have news. For the first little while we will be going to clinic at least twice a week for labs and check-ups so we will probably have news often. We appreciate your continued support and know that
Aiden will keep up his great work kicking
IPEX trash and building this new immune system. WE LOVE YOU ALL!
Monday they let us out of his room for the first time since Sept. 30th! We got to go for a walk around the hospital with instructions to steer clear of people and make sure to wear the mask. Of course we had to break out the new spiderman hat. It was so fun! 
We got to visit the life size Spiderman! Sweet! Aiden is doing great. He has been eating a little bit and they are starting to switch most of his meds over to oral. We will still go home on 2 that I will run through his central line. We will also be doing TPN (IV nutrition) at home through his line! but hopefully that won't be for too long. Mornings are still a little rough but he is doing great and they are continuing to take away meds like the adavan and the benadryl. 
He even got to ride in the Wagon. We went over to U of U and got a hot chocolate and rode in the elevator. It was an adventure. Day +19 we had some great news! Aiden's platelet's engrafted so his body is making it's own platelets - no more platelet infusions! YAY! Mom came up Wed and stayed with Aiden so that Brent and I could go to Logan and pack up the stuff Aiden and I will need for the next 90 days. We will be staying at the Ronald McDonald Main house in their long-term stay apartment. It is all brand new and super nice. It was a quick trip to Logan and back. Now all we have to do is organize the apt and disinfect everything, grocery shop and we will be all ready to be discharged. The girls are so excited to have Brent coming home! The docs have told us Fri is the day! Thank you so much for all of the prayers and faith and love! You have all been essential and to our success and we couldn't have done it without you! We are so grateful! I will continue to update the blog as we have news. For the first little while we will be going to clinic at least twice a week for labs and check-ups so we will probably have news often. We appreciate your continued support and know that Aiden will keep up his great work kicking IPEX trash and building this new immune system. WE LOVE YOU ALL!
I am glad he had a field trip and I love that when you see him next to the Spidee he is holding his hand. Well we all know who our family SUPER HERO is and that is you Aiden. Love and hugs!
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